My husband and I have been asking this question a lot recently. M has taken to waking up early – around 6:30 – and coming into our room, for some reason he seems to do it more often on the weekends 🙄. And we are trying to be better about his potty – so of course 5 minutes after he’s in bed he decides he needs his potty and then sits there forever and/or decides he needs it multiple times a night. One night he sat there for almost an hour – I was surprised his legs didn’t fall asleep. And another he actually fell asleep on the potty! So he’s still manages to run around like crazy when only sleeping from 9-7 with no nap! But the worst is it means my husband and I are staying up later so we have some time together sans kids.
And E is wanting to walk – of course she can only do it by holding hands so my back is getting sore. She also LOVES climbing the stairs. And also pulling herself up – but then she doesn’t yet know how to get down so she cries. All of these things means I feel like I’m more attached to her again, which is making it hard to cook dinner.
Fortunately they are both pretty cute.
I’m now a week post treatment – it’s been weird not running around with blood work, picking up drugs and dressing changes. But it is a nice change of pace – being able to sit at home and deal with side effects without having to push myself. Fortunately, for me the side effects of the chemo were fairly minor and I hopefully will have no lasting problems – I guess time will tell. But most of them seem to have past, currently the worst is the tiredness, although that might be a result of having 2 young children! It probably helps that the weather has been unseasonably warm – neuropathy has been a problem and it’s worse in the cold. But this has it’s own problems, as it’s now very slippery in areas and I’m at increased risk of bleeding if I fall.
Someone has discovered how to climb the stairs – so we now have those baby gates up again. It was just this week that I was preparing dinner and felt a tug on my leg – I thought it was M but it turns out that E had managed the one step up to our kitchen from the family room.
E had her 15 month check up on Friday. We were looking forward to it as she’s been running a slight temperature for over a month – we had previously called about it, but since everything else seemed fine they weren’t too worried. Turns out she’s has a slight ear infection, so she’s now on antibiotics (which she really seems to like!) – hopefully they’ll work. Otherwise she’s healthy and growing – 45th percentile for weight, 75th for height and 97th (49 cm) for head circumference. We make big headed babies! We warned the nurse she had a big head but she kept having to increase the size of her measuring device and we learned that E HATES having her ears cleaned. Apparently they were full of wax, but honestly I felt like snatching her from the table while she was undergoing this ‘torture’.
I’m having a hard time believing that chemo is done – it might feel real in a week and a half when chemo would normally be scheduled but I’m sitting at home, or maybe it’ll happen when I start to see some real hair growth. I’ve heard this can be one of the most difficult phase of treatment – active treatment is over but you have nothing to replace it and no way to know if you’ll be one of the unlucky ones who has a recurrence or has it spread. I think getting back to work and some kind of routine will help me.
I have officially finished my chemotherapy treatment and had the PICC line pulled today. I got to ring the bell, this signifies the end of treatment. I have mixed feelings about this – I was lucky other than some more surgery and some extra Dr appointments for awhile my active cancer treatment has ended. But I know others aren’t so lucky as their treatment will never end. But for now, for me, Valentine’s day will have special meaning.
I can’t believe tomorrow is my last chemo treatment. It’s hard to believe it’s here already – in some ways it seems like it’s been a long time coming as I was diagnosed in September, after a biopsy in August, but when I look back it really hasn’t been that long, less than half a year. In the grand scheme of things it really isn’t that long – but all life changing event seem to happen in the blink of an eye.
I met with my oncologist on Monday and I even get my PICC line removed tomorrow – this will be a relief as it’s not easy to bathe (or bathe the kids) with a big waterproof sleeve. The PICC line can’t get wet. And then that’s it – unless I have any concerns or problems she’ll see me in 3 months to see how everything is going. But no more PICC line changes or blood work.
It hasn’t all been breast cancer – I called the gynecologist who will be doing my salpingo-oophorectomy (removal of ovaries and fallopian tubes – apparently ovarian cancer is often thought to originate in the fallopian tubes). This was going to happen after my ‘prophylactic’ mastectomy but had to be put on hold after my diagnosis. So since I was approaching the end of treatment I called to see what the next steps should be. The call back seemed to indicate that she wanted to see me in May / June – we weren’t to happy about that as that would have meant that surgery would likely be in the Fall. As this isn’t an emergency surgery is scheduled a few months out. But fortunately they meant that surgery would be scheduled in May / June. So I now have that to look forward to; although, I do have a procedure next week to hopefully get rid of my pilonidal cyst. Apparently, there is a new procedure (the Dr. has only done 2 so far) that was presented at a medical conference this past November – this one is much less invasive than the normal surgery. From what I understand it’s like the breast biopsy I had except on the cyst, they core out the problem area and hopefully it will never bother me again.
As M starts school in the fall he is registered with the local Catholic school – everyone who we’ve spoken to has had an overall positive experience there and it’s the closest school. But there is an added benefit we didn’t even realize. The affiliated Catholic church is about a 3 minute walk from our door and we are now on the e-mail list for events. Last Sunday was a winter fun day and it was great. We had lots of snow fall – 5 to 10cm – and is was perfect for making snowmen. Plus they had smores! M had a great time, E wasn’t so thrilled with sitting in the snow – hopefully she will enjoy it more next year when she’s walking.
Although M really enjoys the snow I’ll be glad when the weather warms up. M has been fighting colds all winter and E has been running around 99 – 100 for about a month, with the occasional spike or dip. She seems otherwise healthy so there is not much we can do. Fortunately the ridiculously expensive drug I’m on seems to have kept me amazingly healthy this winter – I don’t understand why these drugs aren’t immediately prescribed when you’re in chemo.
I have definitely entered menopause, or as others have said chemopause.
So for a while I’ve noticed I’ve been feeling hot and having troubles maintaining my temperature. Normally I need a blanket, heated blanket (to warm the bed before getting in) and comforter to sleep during the winter, but recently I haven’t turned on the heated blanket. In fact, I usually end up kicking off the sheets. But it been fairly constant and not feeling like a flash. However, last night was the worst so far, in fact, my face has been flushed since last night. And for the first time more of my body got involved. And this is likely to last as I plan to have my ovaries removed as soon as possible.